The Ecosystem

A group of diverse hands coming together in a supportive gesture, symbolizing unity, collaboration, and shared commitment to a common cause.

Building a Global Ecosystem of Care and Empowerment

Our Mission: • Everything is in our name: Lynk Up World.

At Lynk Up World (LUW), everything we do embodies our name.

We link people and resources to create a comprehensive support system for the rare disease community. With a network driven by dedicated volunteers around the world, LUW fosters opportunities to give back, inspire hope, and support families as they navigate the complex rare disease journey.

A group of diverse hands stacked together in a circle, symbolizing teamwork, collaboration, and unity in working toward a shared goal.

Volunteer Network

The Heart of LUW

Our global volunteer network is the cornerstone of LUW’s ecosystem. These committed individuals contribute time, expertise, and compassion to support families, develop resources, and drive impactful change.

Two hands grasping firmly in an act of support, with one hand pulling another upward, symbolizing assistance, trust, and helping others overcome challenges.

Partners in Impact

Collaboration for Greater Reach

Through strategic partnerships with medical, corporate, and nonprofit leaders, LUW amplifies its reach and impact. Together, we build bridges between industries and communities to enhance care, foster innovation, and create lasting change.

Two hands clasped together in a firm grip, symbolizing solidarity, mutual support, and partnership in a vibrant outdoor setting.

Why 501(c)(3) Status Matters

Commitment to Transparency and Public Benefit

Operating as a 501(c)(3) nonprofit underscores LUW’s dedication to serving families affected by rare diseases. This status ensures our mission remains community-focused and driven by impact over profit. 

Our nonprofit status is a testament to our pledge to create meaningful change that endures.

Recommended for you