The Cause

A happy family of four sitting together in a cozy living room, smiling and embracing each other, symbolizing love, connection, and support within families.

Why We Exist
Empowering Families,
 Elevating Voices

Our Purpose

LUW’s mission is rooted in the belief that no family should face the challenges of rare diseases alone. We exist to bridge the gap between medical care and emotional support, providing families with the resources, community, and compassion they need to thrive. Our work centers around fostering resilience, connection, and hope within the rare disease community.

Addressing the Critical Need

The Reality for Families

For millions of families, navigating rare diseases means facing fragmented care, limited support, and isolation. The path is often marked by scarce information, high stress, and emotional exhaustion.

Our Response

LUW steps in to transform this landscape. We bring together families, caregivers, and partners through innovative programs and a supportive ecosystem that prioritizes mental, emotional, and practical well-being.

Families dealing with rare diseases often feel isolated and overwhelmed by a lack of resources, lengthy diagnostic paths, and complex care routines.
•
Over 300 million people worldwide are affected by rare diseases, yet fewer than 5% of these diseases have approved treatments.
•
When including families and caregivers, an estimated 1.2 billion additional people are impacted indirectly, emphasizing the vast reach of these conditions and the urgent need for comprehensive support and resources.

Our Initiatives

Making a Tangible Difference

A young girl in a wheelchair laughing as a caregiver helps her brush her teeth, symbolizing caregiving, daily routines, and shared joy.
A young boy in a wheelchair looking out of a window with a smile, accompanied by a black service dog sitting beside him, symbolizing accessibility, companionship, and hope.
Three children playing outdoors and blowing bubbles, laughing together, symbolizing friendship, inclusion, and carefree childhood moments.
A young woman in a wheelchair and a man sitting beside her, both smiling and basking in the sunlight in an outdoor setting, symbolizing relaxation, connection, and enjoying the moment.

Our Commitment to the Community

Driven by Empathy and Action

LUW’s initiatives are powered by empathy, guided by compassion, and driven by the mission to uplift families navigating rare diseases. Beyond individual efforts, we aim to build a global movement where every voice is heard and every family feels supported.

501(c)(3) Nonprofit Status

Lynk Up World, Inc. is a registered 501(c)(3) nonprofit organization. All contributions are tax-deductible under Tax ID: 86-2951897, ensuring transparency and reinforcing our dedication to community-driven impact.

Closing Message

Together, We Make a Difference

LUW is more than an organization—it’s a lifeline for those facing the toughest challenges.
With your support, we can continue to build hope, drive innovation, and change the narrative for families impacted by rare diseases.

Recommended for you

Subscribe to our Newsletter